Musings

I Believe in Hope

When did hope lose its meaning? When did it go from hanging out with its support team of faith and love to being in the wrong crowd with fat chance and cold day in hell? When did people stop believing in hope?

As a child I was frequently told “don’t get your hopes up.” But I wasn’t the only one and it’s still happening today. As a society we are constantly told and sold the belief system of “muddling through” and “just getting by” from the pharmaceuticals that offer more side effects than relief from symptoms, without hope for a cure, to lottery tickets with impossible odds to the nightly news spewing crime and violence as headlines.

Hope needs an intervention. We need a conversation with hope to remind it and ourselves of its true nature. That real hope and belief in miracles is possible. Not the watered-down pie-in-the-sky hope of “good luck with that”, “let’s not get our hopes up,” because “there’s a slim chance” of a cure, or winning, or even survival. Are we so afraid of disappointment that we no longer believe in hope?

“I believe that imagination is stronger than knowledge. That myth is more potent than history. That dreams are more powerful than facts. That hope always triumphs over experience. That laughter is the only cure for grief. And I believe that love is stronger than death.” ― Robert Fulghum

I left the highly supportive world of autism support groups in 2010 when our family moved to Minnesota. Finding that the local group in our new town had recently disbanded and that my son, with the healing power of real nourishing food, no longer needed an I.E.P. (ticket to special education) for autistic traits he no longer possessed, I felt no void, until recently.

The lead character in my children’s books is a marmot. The books are our stories ON (Moby’s First Day of Kindergarten is about autism acceptance and peer advocacy) and OFF (Moby’s First Day of Summer Vacation is about the healing power of food) the autism spectrum. So I reached out to see if I could set up a table at a local autism awareness event to share information about my books and my upcoming community education gut-healing cooking classes. Healing the digestive system is effective treatment for autism and other mental and physical illnesses and conditions. Real food is not snake oil hope, it works. Given real nourishing food, our bodies know how to heal. That’s real hope to get families out of the muddling through world of therapies and accommodations into freedom of possibilities. Don’t get me wrong, the work done by therapists, social workers, and support staff is necessary and helpful while the body heals. My first book is all about using the tools and tips from these helping professions.

At this autism awareness event under a local park pavilion, I was one of three informational tables all in a row – one table manned by a representative from the state autism society, another one by a local occupational therapist, and then my table. This first time event was well attended. Interestingly, many people gave my table a wide berth on the way to visit the other two tables. It’s not like I even brought my signature Avocado Chocolate Pudding (although maybe I should have), I was just standing there with my books, stuffed animals, and pamphlets. 11056554_10204988563614764_5701123969913562814_n A handful of hopeful people did approach my table interested in my knowledge and experience, but it wasn’t many, which got me thinking. I left the autism community and nothing has changed. “The Experts” upon diagnosis delivery still fail to mention effective dietary intervention to parents just like back in 2004 when we were told “there is no cure for autism” only a daily professionally directed and often medicated navigation through meltdowns and odd behaviors.

Toward the end of the event, I inquired with the very kind representative from the state autism organization on how I could submit a presentation proposal for the state autism convention. She gladly filled me in on the submission process, and then cautioned that I could not mention healing or cure. Funny how it’s acceptable to cruelly proclaim a lack of a cure, but not a cure. As a Certified GAPS™ Practitioner, I claim that gut-healing real nourishing food offers effective treatment for autism. The state autism representative agreed that the wording of “effective treatment” is acceptable. Consider this, treatment is okay because it doesn’t get people’s hopes up too high, but a cure for and healing of autism is irresponsible. We were given no hope for our son’s future. We proved them wrong, my son is no longer on the autism spectrum and his future IS FULL OF HOPE.

Since my discussion that day, I was hit with yet another hope deluding recommendation to limit my verbiage, which makes me dig in my hopeful heels even deeper. A fellow business group companion cautioned that I should not even use the words “effective treatment”, but rather “may alleviate symptoms” would be easier for people to swallow. But I like feeding people real nourishing spoonfuls of hope and will continue to do so. I believe in the power of hope.

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“Hope is the thing with feathers
That perches in the soul
And sings the tune without the words
And never stops at all.”
― Emily Dickinson

Musings

Miss Compassionality

Miss Idaho’s visible insulin pump undeniably promotes diabetes awareness and acceptance as illustrated in NPR’s article, “Hey, Miss Idaho, Is That An Insulin Pump On Your Bikini?” Good for Sierra Sandison (Miss Idaho) and the minds she will open and the others she will encourage by her act of courage to show her medical device, her difference in this world, her challenge to champion. We need awareness and acceptance because we belong to each other.

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“If we have no peace, it is because we have forgotten that we belong to each other.” – Mother Teresa

My first children’s book, Moby’s First Day of Kindergarten, is about autism acceptance and awareness. Sharing a hand-flapping, headphone-wearing, eye-contact avoiding cute furry marmot named Moby with children and adults is easy. Awareness and acceptance is easily accepted and applauded.

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“When the first day of kindergarten was finished, Sunny said, “Goodbye, Moby.”
Moby quickly tucked his head down and did not say goodbye. Sunny knew nothing was wrong with Moby. She knew it was okay for him not to say goodbye. She knew he was a marmot just like her. She knew she had a treasured friend.” – Aileen Swenson, illustration by Christian Marie McGowan

I love the message of my first book inspired by the heartbreaking and isolating all-too-real events of being “kicked out” of a library storytime, a health food store, and a church and my son being severely bullied, all by unaware and unaccepting hearts and minds of people that did not understand autism.

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“Understanding is the first step to acceptance, and only with acceptance can there be recovery.” – J.K. Rowling

My first book fulfills the first step criteria of understanding and acceptance. What’s the next step according to the Harry Potter author, J.K. Rowling? Recovery, or to use my preferred word, healing.

Healing autism through delicious nutrient dense broths, ferments, and juicing is the message of my second children’s book, Moby’s First Day of Summer Vacation, and the topics of my gut healing cooking classes.

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“That summer Moby’s mom prepared delicious meats and fats served with soups, yogurt, and cultured vegetables that Moby grew to enjoy. Moby loved happy shakes the most, because they made him feel better.” – Aileen Swenson, illustration by Cassandra Joy Swenson

I love even more the healing message of my second book that connects food with feelings and health, but I confess it is a bit more challenging to read. To encourage people to heal themselves with food counters the modern medicine mode of pharmaceutically managing (not healing) illness, not to mention it holds them accountable for their health. After all, what a sense of relief to go to the doctor and be told that diabetes type 1 (and autism) are genetic diseases. The genetic card is the “get off the hook” free card requiring no further responsibility than to diligently take the prescribed medications. While being diligent in your self-care and well-being is important, including taking necessary medications, I recommend that you consider what you eat as well.

Ten years ago when I started dietarily treating my son’s autism, I had a conversation with another mom of a child also with autism. She knew that food could not and would not help her son because she had the brain scans to prove that her son’s brain was and will always be genetically wired differently. She was “off the hook” for playing any nourishing role in her son’s recovery.

The NPR article clearly mentions that Miss Sandison has type 1 diabetes four times, maybe to make her appear blameless, because fault mostly seems to lie with people who allegedly eat their way to type 2 diabetes, one donut at a time. It seems we lose our compassion for people when we blame them for their illnesses. Even emphysema received, what seems to be, a public relations make-over by changing its name to COPD to distance itself from the emphysema/smoker blame game.

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“We must learn to regard people less in the light of what they do or omit to do, and more in the light of what they suffer.” – Dietrich Bonhoeffer

Blaming others and blaming ourselves is counterproductive to healing. People with diabetes type 1 are not better people than those with diabetes type 2. In both types, the pancreas no longer produces enough insulin to lower blood sugar levels. Both types 1 and 2 should be value-free, judgment-free conditions, even though they are somewhat different. Type 1 is an autoimmune disease, a GAPS™ (Gut and Psychology/Physiology Syndrome) condition, that can be successfully treated with broths, ferments, and juicing along with a grain-free, sugar-free diet, just like Moby, the marmot, consumes to recover from autism in my second book. Type 2 diabetes, often attributed to lifestyle choices, likewise responds well to this protocol due to the removal of the major contributors of glucose – grains and sugar. Healing the gut leads to healing many mental and physical illnesses, which may lead to a reduction or discontinuation of medication as deemed appropriate by your physician.

My hope is that Miss Idaho continues to champion the diabetes awareness and acceptance cause and that sometime in the near future we have a pageant platform, or better yet a societal movement, that promotes what Hippocrates knew long ago, “Let food be thy medicine and medicine be thy food.”

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Now that we have understanding and acceptance, let’s take the next step to recovery and healing and let’s do it with great compassion! You matter! What you eat matters!

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“Compassion is a verb.” – Thich Nhat Hanh

P.S. My oldest son, no longer on the autism spectrum, healed with the GAPS™ protocol, often encourages me to write a third children’s book in which Moby takes a field trip to Monsanto headquarters and hears the CEO of Monsanto say, “No, Moby, I am your father!” Ha!

Savory Recipes

Bone Broths

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bones, cartilage, skin, etc. (chicken, beef, turkey, etc.)
enough water to cover bones
¼-1/2 cup apple cider vinegar
1 onion (optional)
a few carrots (optional)
a few celery sticks (optional)
1 teaspoon pepper or crushed peppercorns (optional)

Add all ingredients to crockpot and cook on low for 48-72 hours. Continue to add water as needed to maintain bone coverage while cooking. Strain and refrigerate or freeze. Enjoy!

(Meat broths, made from meat, bones, etc., are simmered on the stovetop from 1-3 hours and are also beneficial. Do not add apple cider vinegar for meat broths.)